I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Monday, May 7, 2018

This has gotten old fast (a Gastroparesis update).


I'm home and medicating with the phenergan that my local doctor prescribed. I guess I should have been taking it to begin with, but it messes with my HKPP so I avoid it unless I'm to the point of unbearable nausea. In this case, it happened too quickly to consider the meds. I was fine at 11pm, and sick by 12:45am. I vomited so much for so long, I lost my voice. As soon as I was able to balance on my legs again, I drove to the dreaded ER.

I complained about being cold so often, they pushed a bag of fluids into me and sent me out the door in 2.5 hours. I couldn't leave fast enough. No pillow, no blanket, just my shivering, purging body in a gown hooked to a sodium IV, which did my HKPP no favors. I'm convinced I'll never receive potassium at the ER again. I tell them I have a history of Hypokalemic Periodic Paralysis, but with serum potassium above 3.3, they won't even consider it. So frustrating. I'm safer at home.

So here I am. I'm doing a lot better today after sleeping most of yesterday. I drank some soup broth, ate water crackers, cleaned the kitchen, had a great mango smoothie, and now I'm back in bed uploading an audiobook (The Tell-Tale Brain, if you're curious).

I did have a decent 12 hour window of function before all of this madness occurred. I did not take it for granted. I'll share the shenanigans in a photo-heavy post soon. For now, I must rest.