This blog is currently under renovation. Thank you for your patience.

Monday, May 7, 2018

This has gotten old fast (a Gastroparesis update).


I'm home and medicating with the phenergan that my local doctor prescribed. I guess I should have been taking it to begin with, but it messes with my HKPP so I avoid it unless I'm to the point of unbearable nausea. In this case, it happened too quickly to consider the meds. I was fine at 11pm, and sick by 12:45am. I vomited so much for so long, I lost my voice. As soon as I was able to balance on my legs again, I drove to the dreaded ER.

I complained about being cold so often, they pushed a bag of fluids into me and sent me out the door in 2.5 hours. I couldn't leave fast enough. No pillow, no blanket, just my shivering, purging body in a gown hooked to a sodium IV, which did my HKPP no favors. I'm convinced I'll never receive potassium at the ER again. I tell them I have a history of Hypokalemic Periodic Paralysis, but with serum potassium above 3.3, they won't even consider it. So frustrating. I'm safer at home.

So here I am. I'm doing a lot better today after sleeping most of yesterday. I drank some soup broth, ate water crackers, cleaned the kitchen, had a great mango smoothie, and now I'm back in bed uploading an audiobook (The Tell-Tale Brain, if you're curious).

I did have a decent 12 hour window of function before all of this madness occurred. I did not take it for granted. I'll share the shenanigans in a photo-heavy post soon. For now, I must rest.