Tuesday, March 20, 2018

Not how I planned to spend my birthday week.

I spent the night under observation after a horrendous day with Gastroparesis. I had a contrast CT, blood work, and referrals back to Primary and Gastro physicians.

I'm home and pretty much camped out in the bathroom until this purging episode decides to resolve. They gave me some fluids to combat dehydration, and a shot of Bentyl to try to calm my stomach muscles, but this remains an ongoing situation for now. I'll get a three-day script for Zofran filled sometime today, which will hopefully make a difference.

Thinking forward, it looks like I was on the right track with a liquid/soft diet, but I made the mistake of trying solid food again, which caused a lot of problems. I may have to permanently halt the Muscular Dystrophy diet and switch solely to a Gastro diet to try to manage this, and just hope my HKPP doesn't get worse as a result. As I mentioned a few years ago, the usual prescribed medication, Reglan, is a major no-go due to triggering serious periodic paralysis complete with respiratory distress. So I'm sort of up a creek without a paddle, as I am with a lot of conditions that I live with.

My late MawMaw used to have a fun cup holder that said "THIS IS NOT THE LIFE I ORDERED".

I could not possibly concur more.

Saturday, March 17, 2018

Saturday, March 10, 2018

40th Birthday Cancer Fundraiser


For my upcoming 40th birthday, I would like to raise $200 for the Leukemia and Lymphoma Society. The money goes directly from you to them. I am using the Facebook platform because that is where most of my friends and readers are.

Thanks so much for your consideration.

Friday, March 9, 2018

Reading, Writing, and Art (March 2018 Update)

I've read or listened to 50 books since November, not including books that I started and abandoned (more on the blog soon). I'm currently listening to #51, The Time Machine by H.G. Wells.

Now in queue:

A Clockwork Orange by Anthony Burgess
Sense and Sensibility by Jane Austen
Pride and Prejudice by Jane Austen
The Complete Works of Emily Dickinson
The Hobbit by J.R.R. Tolkien
Journey to the Center of the Earth by Jules Verne
A Wrinkle In Time by Madeline L'Engle (I'm giving it another chance; only made it through a few chapters the first time)
The Black Penguin by Andrew Evans
Lethal Licorice: An Amish Candy Shop Mystery #2 by Amanda Flower

That will bring my total to 60 books. My goal for the year (Nov 1 '17 to Oct 31 '18) was 52, so I guess I will either take a long break or increase my goal.

No art happening. I can't get through the anxiety. I'm considering ditching my entire art supply closet and not thinking about it anymore. I would try to complete works in progress first, if I decided to go through with that. I lie in bed and think about all of the art I want to create, but when faced with the task, the room is suddenly on fire and I want to jump off of my non-existent balcony. I'm in no way joking about that. I realize my pain level, limited muscle strength, and poor motor skills are a factor also, I dare say, far more than my brain. I'm pretty torn about what to do.

Camp NaNoWriMo begins April 1, and if I can get my head together, I'll switch to writing mode. I need to add content to The Children of Mossy Hollow, but I'm saving that for official NaNo in November, so I am planning some short stories and poetry for camp (which I believe will go swimmingly; at least I'm optimistic about something).

I changed my bio on the sidebar. It's much shorter and to the point now, kind of like my temper these days. LOL

I shouldn't laugh about that, but sometimes, it's all I can do.