I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Monday, March 26, 2018

Health Update 3/26/18

Zofran is my BFF right now. This has been a rough week, but it feels like my digestive system is trying to wake up. I hope I'm right, but I'm remaining cautious. I eventually want to incorporate baked or braised seafood and chicken in very small amounts, especially in soups, but I don't plan to start that today. I do have a future meal plan lined up for when I am ready to transition.

It does appear that I will have to give up beef, pork, and cheese indefinitely. I've done enough research to know that all of the above are difficult to digest, and cause a lot of problems for Gastroparesis patients. I'm also going to have to break up with my boyfriend, Coca-Cola, once and for all. I'm already aware that I shouldn't be drinking it anyway, so save your sermons. I do plan to try a few soft, fat free cheeses to see if I can tolerate them, but it'll have to wait for now.

I ordered two cases of EAS Myoplex Carb Control from Walmart.com. They're Fed-Exing it to me, so I should have it all by Wednesday. Those shakes are pretty expensive, but my current liquid/soft diet has turned out to be too high in carbs (I've been monitoring this on My Fitness Pal over the last several days). EAS's Carb Control line is perfect for me, and they taste ok. If I find that I improve over the next couple of weeks on my lower carb liquid/soft diet, I'll do my best to budget in the shakes so that I never run out of them. I can't imagine them not making a difference.

In related news, my Lose It app informed me this morning that I was awarded the "Lost 10 pounds" badge. Needless to say, I don't recommend illness as a weight loss method.

In Muscular Dystrophy news, I'm still having random spasms, but nothing like the myotonic episode of doom from a few weeks ago. I do remain weak and haven't fully recovered from that, with my head, neck, and shoulders feeling heavier than they used to (and they were heavy before, thanks). I hope that with time, the heaviness will improve. I continue to push myself in ways that single people must: cleaning, grocery shopping, etc. and it is a struggle every time, but I survive and crash into my bed until I can get up again. That's all I can do.

I don't know if I'm going to make it to Jackson in a couple of weeks. Driving isn't really the issue, it's simply being able to sit up that long. Currently, I'm in bed most of the day, and I have to stay near a bathroom. But if I'm feeling better by then, I'll go.

That's all for now, I suppose. Fingers crossed that my digestive system kicks in again. And as always, I appreciate the prayers and well wishes.