I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Thursday, November 15, 2018

A Grumpy November Update



NaNoWriMo was a mistake. I've been writing about my life, and it couldn't be more dreadful. I hate everything. I want to end NaNo now (wanted to by the 8th, truth be told), but I'm going to push through to the end. Some of the content is worth keeping. Some of it sucks. Either way, I'm bored out of my mind, and often depressed. Blogging usually helps, but lately, I don't even want to do that.

Exhaustion and chronic pain are the underlying issue, I realize. It brings me to tears lately, and I'm not usually a crier where that is concerned. I also went to the doc last week, and I'm so frustrated with their negligence I want to throw all of my medication in the trash and say to hell with staying alive. I know I need to stop letting them get to me that badly, but I'm forced to rely on people who are unreachable and unconcerned with the fact that my condition declines every time they ignore and/or screw up my medication paperwork. I end up temporarily losing an expensive medication from my regimen because insurance denies coverage, and I have to wait a week or two or five for it to be corrected. So I'm on a med, then off of it, then on it again, then off of it again, etc. every few months. It's not safe, but I'm made to feel bad for getting mad and making them address it because they're busy. I know that, and I've never once implied that I'm their only patient. I just need people to get this right because they are directly affecting my muscle strength. The alternative is to stop the medication altogether and suffer. That's obviously the wrong answer.

But I don't have the right answer, either. And I'm so freaking tired of this.

I am physically stronger on the medication, but the frequent stress on my body and mind over consistently obtaining it is making me wish all of this would be over. I'm as calm as always on the outside, but internally, I'm not coping. I think about dying too much; both wanting and not wanting to do it.

I watched more footage of the HKPP conference in Dublin, and couldn't wrap my brain around all of the new info. My cognition isn't in the best shape. I am no good at this, or to anyone anymore. I would probably benefit from a companion to help me sort out things sometimes, but who would want to deal with all of this, or with me at all? I don't even want to deal with me, and it angers and upsets me that I feel like wanting anybody to do anything for me. I'm a mess.

There is not enough sleep on this planet, but I'm going to try to achieve some. I've reached out to some friends in Mississippi, and I'm going to drive over there for a get-together tomorrow night. May it be a remedy for my dying sanity, or at least a band-aid. I'll take anything.