I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Tuesday, February 20, 2018

You're not the only one who noticed.

I have also noticed that I blog more often, not less often, when I'm sicker. Laptop computer for the win? It's the fact that I can't get up and out and do other things, I suppose, so I sit here and type.

I am doing better, though. I am still having a great deal of head-to-toe weakness and muscle pain from the myotonic episode of doom, but I am functional enough to drive to the grocery store and buy a sandwich (which is what I did today), so that is certainly an improvement over a week ago. I will need to improve more to be able to sit up long enough to go to my doctor appointments in Jackson. Right now, the window of functional time is small. But at least it's something.

No changes, therefore no further comment, on the gastroparesis.

My medical blog has been on hiatus, but I do plan to catch up on it soon. Apologies to my readers over there who check it regularly. I do have some things to share, but you'll probably see a lot of repetition as I will talk about some of the stuff that you've already read on this blog. I originally wanted to keep the two blogs separate, but it just hasn't worked out that way because this is my "life" blog, and my life resolves around my battle with systemic disease. That's just the way it is.

One of my blog readers passed away over the weekend. We were online pals for a few years, but he said some things a while back that I considered way out of bounds, and I cut communication. He still read the blog, to my understanding. I am truly sorry for his children, and I offer sincerest condolences. He was far too young for this to have happened.

I'm tired of people dying in general. I think my brain is shutting down, in a sense, because tragedy is happening so often that desensitizing is the only way to cope. It always comes out one way or another, though. Either I weep over a TV commercial or I curse at the self-checkout or something. I'm a HSP - Highly Sensitive Person - so it will always come out even if it's a delayed or atypical reaction.

I don't feel like sitting up anymore, so I guess that's all for now.