This is another hard loss for the Periodic Paralysis community. He was a sweet man who helped run the advocacy network in the Philippines, along with his friend who passed away last year. My heart goes out to his loved ones.
I am tired. I keep hoping I'm the next one to go, because I'm too tired. I want out. I just don't want to suffer or be in pain when it happens.
I'm applying for the waiting list at MDA clinic in Alabama. It has very mixed reviews, but I need to stay connected with more than one physician if I intend to continue on. I will finally go up there on February 11th if my brother's surgery on the 10th doesn't screw me over. I want no part of any of this, and I resent nearly every moment of my life. The only solution I can think of is death, but it's a lousy one.
So I reject it, for now.
