I went to Internal Medicine today. It went well. I am dealing with kidney stones, but thankfully I’m not screaming in the emergency room. It’s still pretty miserable in addition to migraine and muscle pain that I live with 24/7. The nurse gave me a shot of Toradol, which is a prescription-level NSAID.
Labs were good except blood sugar, but I had just guzzled a huge bottle of Gatorade before the appointment. Sugar was 195, so they ran a stat A1C and it was normal! Not even high normal or dangerously close to not normal, it was normal-normal! Considering my entire immediate family is diabetic, I am relieved to once again dodge the bullet. I am going to switch back to BodyArmor drinks though, because I think it doesn’t raise my sugar as much. Nobody needs a spike like that, especially when glucose has the potential to be a paralytic trigger (not as much for me as other triggers, but still a risk).
I am finally having my aldosterone checked! I am interested in knowing if it’s high. My biggest HKPP trigger by far is hormone release, especially adrenaline. If my aldosterone is elevated, it’s contributing to my symptoms and I may be allowed (by insurance 😑) to resume Inspra. It’s horrible, sometimes downright murderous, that insurance companies get to say someone doesn’t need an expensive drug that was prescribed. Just awful.
My Vitamin D level has been a lifelong problem. We’re still trying to figure that out. And of course Vit D can contribute to stone formation, which is a no-win situation.
My body is so difficult. I’m grateful to have a doctor who is still trying.
My Neurology appointment was moved to May 1st and switched to a different doctor in a city much closer than Birmingham. I will hopefully be ready to meet him to discuss migraine and autonomic nerve dysfunction.
I haven’t found a Psychiatrist yet. The one my doctor is affiliated with who takes my insurance writes Bible devotionals in the local paper. That’s a resounding NOPE from me. I may be out of luck.
That’s all for now.
