Saturday, June 18, 2016

Bad HKPP Episode, and Nightshades

I had a big episode last night after eating mashed potatoes. Not only is it a simple carbohydrate, it is also a nightshade vegetable. I decided to research nightshades due to the fact that people have said they can cause muscle problems, and what I learned was very disturbing.

They're cholinesterase inhibitors, which can cause everything from inflammation to dementia. Other cholinesterase inhibitors include pesticides (HUGE dangerous HKPP trigger in me...one of the worst!) and even some teas. If pesticides wipe me out (and believe me, they do with a vengeance), it makes sense that nightshades would do the same.

List of nightshades and other risky produce:

tomatoes
potatoes (not including sweet potatoes or yams)
eggplant (also called aubergine)                                      
peppers (all varieties except white and black peppercorns)
goji berries
huckleberries
blueberries
gooseberries
cherries                
tobacco
paprika

Beware of spice blends, which usually contain red pepper and/or paprika.

There are a few other no-no plants out there, like Petunia and Belladonna. Feel free to Google if you want to look into it further. The lists are all over the net.

I've concluded that I need to address the following:

1. A trial of nightshade elimination, perhaps for several months to see what happens. I can give up potatoes and berries. It's the tomatoes and peppers that will prove to be a significant challenge.
2. Switch exclusively to organic produce to avoid pesticides, which can seep into the vegetable or fruit, making rinsing kind of pointless. Of course it depends on what you're talking about. For example, strawberries are on the danger list, but onions are considered safe due to their skin and protective layers.
3. I already know to avoid carbs, but I can't eliminate them altogether because my blood sugar drops (which causes serious problems in itself). I limit them already, but the mashed potatoes were an obvious mistake. Noted.

This isn't going to be easy, considering my diet is already strict, but I will make it happen if it will help. I hope I never forget how miserable I've been since last night...the pain has been unbearable, I've barely been able to move my legs or sit up due to severe weakness, and it has been difficult to breathe. Typing isn't exactly a walk in the park either, but I felt this was too important not to blog about as soon as possible. (My arms are furious, though.)

If you have HKPP and you have eliminated nightshades, I'd love to hear from you about your experience. ugottafriend4life@gmail.com

I'm off to drag myself to the kitchen for more potassium. Thank God my apartment is small and I have a rolling walker. I have been having an incredibly difficult time lately, and this setback has been no help. I missed a family reunion today and I've missed many other events over the last few months thanks to a decline in my condition. A power chair is on my wish list for Santa this year. It's time.