I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Thursday, January 28, 2016

January Medical Update

I saw my new eye doctor on the 26th. He was outstanding, and I intend to keep him forever. My eyes haven't worsened, thankfully. I'm still bat-blind without lenses of course, but I see pretty well with them (about 20/50). My eye muscles are weak, which could be contributing to not seeing 20/20, or I could have permanent damage from the scratched corneas I obtained about 14 years ago. There's really no way to know for sure, I guess. I have a script for Restasis for chronic dry eye, but I have to wait to find out if it's safe to use (steroids are a dangerous no-no with HKPP, but eye drops may not be an issue...we'll see). I picked out new purple glasses, and I will begin a contact lens trial after my current migraine resolves.

Next up is Internal Medicine clinic, which is in February. I'll have bloodwork to look at my BMP and kidney function again, but I don't anticipate any other drama (famous last words, knowing me). I pushed MDA and Renal clinics to May 3rd through 5th, but as it stands right now, I am neither physically nor financially able to go to Jackson. If this changes by May, I'll go. If not, I'll have to cancel until I see improvement in these areas. I don't have a choice.

Winter is very hard on me, and I look forward to warmer, less painful, more functional days. In spite of how difficult 2016 has been so far, I'm counting my blessings.

Friday, January 22, 2016

No Words

A Facebook friend unexpectedly passed away.

I've pretty much had all of 2016 I can take at the moment. I'm going to go to bed and pull the covers over my head.

Monday, January 18, 2016

Another great artist gone. Screw you, January.



A painful goodbye to one of the best singer/songwriters in American history.
RIP Glenn Frey. You were a favorite. Thank you for your incredible songs.

Saturday, January 16, 2016

Heartbreaking Week




Man, 2016, what on Earth are you doing to us? David Bowie, Brian Bedford, and my (and so many others') beloved Alan Rickman gone in the same week. The world of entertainment is crushed and countless hearts are grieving, as hearts do and should. We're designed to process the loss of those who made an impact on the world. Even if we never met the person, that fact is irrelevant (I'm talking to you, cynics...get over yourselves), and it's more than ok to cry and feel sad that they're gone. It hurts when someone's talent touches your life and that someone is taken away. The pain is real.

I guess it helps a little to know we're not feeling this way alone. We can at least take solace in that.

Sunday, January 10, 2016

Sadie turns one!




Aunt Kelli's sweet pea turned a year old on the 6th!
I was too weak to drive, but I thankfully carpooled
to Louisiana to attend her birthday party on the 9th.
I don't have permission to blog others' pics (I haven't asked),
but I took these few myself, so thought I'd share.

She's such a sweet baby, and I'm so happy she's with us.