I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Saturday, March 28, 2015

Sleep Woes

The CPAP has been overwhelmingly unsuccessful thus far. At best, it will prevent death by sleep apnea because the oxygen is being pushed into my nose, but I'm sleeping no more than I have been. In fact, I have times when I give up and take the mask off my face because I can't stand it anymore.

I've heard from plenty of people that this is common. A friend from overseas who has Periodic Paralysis and is also on a CPAP suggested I hang in there and give myself time to adjust to it, even if that means months down the road. I have no intention of quitting the thing, but it's not helping me to fall asleep or stay asleep, and I feel defeated.

I'm tired of feeling less than human. I feel like I don't have an ounce of strength or sanity left at times, yet I surprise myself by making it through another day. I don't know how I'm doing it. I'm absolutely convinced that when I do keel over someday, it will be from sleep deprivation, not muscular dystrophy.

Edit Note 3/30: I saw my doctor today. The study results showed that my breathing was compromised 79 times in the 3 hours I was asleep. We're disappointed that I'm not sleeping better on the CPAP so far, but we agreed to increase the pressure to see if that will help.

Monday, March 23, 2015

Friday, March 13, 2015

Wednesday, March 4, 2015

Let the Zs begin

Really appreciate the folks who donated this equipment to me. I have no idea what I would have done otherwise.

I'll give a review of my sleeping habits in a few weeks.