Sunday, September 15, 2013

"It's late September and I really should be back at school..."

A bit of irony in using that song, but the line is appropriate.

As I mentioned recently, I am not allowed to return to college thanks to being forced on Social Security. It is something that I have a hard time coping with, but I'm trying my best to stay busy and productive. One thing I've done is resume MIT OpenCourseWare, which is an excellent alternative to the classroom if you're not wanting to (or can't) take courses for credit.

I decided to brush up on Psychology by watching Intro lectures, and I love it.

I still wish I was in a classroom, but I'll live. It's not like I have a choice.

One advantage to OCW is that there is no deadline on anything. I'll be able to put this on the back burner while I complete NaNoWriMo, which would never happen otherwise. I look forward to checking out more courses. I have Pharmacology and Biology/Genetics in queue, as well as more Psych.

NaNoWriMo plans are coming along, but I'm already finding myself saying "What were you thinking?" in choosing a collection of short stories instead of one novel. My mind is scattered all over the place, as opposed to focusing on one plot. Eeek. I'll manage. I am really loving some of my storylines, although I have very little more than a few pages of synopses at the moment. I'm trying to decide whether or not to dive into video blogging as a way of documenting the journey. I'd like to share my feelings about stories and characters, etc, without having to sit here and type out a blog. I'll be doing quite enough typing as it is. We'll see.

Daily life with Periodic Paralysis continues to be unpredictable. I have made another attempt to titrate the acetazolamide, but the side effects remain nearly unbearable at times. I keep a migraine, stomach is upset, and senses are heightened. I have to wear sunglasses or stay in dim rooms most of the time. I can't stand to be touched. I have a weird gag reflex to certain tastes. Smells range from annoyance to full blown HKPP episode, depending on what it is. Just the sound of my phone makes me want to have a meltdown and throw it into the street. I have lost count of the calls I have failed to return. Family, friends, and pretty much everyone. I would rather utilize any other form of contact under the sun than the telephone. It is literally painful. My senses were screwed up already, but they are much worse since the HKPP treatment was kicked into high gear. On a happier note, my legs are hanging in there. Still heavy and weak, and they hurt horribly, but they seem to tolerate slightly more activity than they used to. My upper body still needs a great deal of improvement, but I don't paralyze every single day anymore. I feel like I'm repeating myself (how much of this have I blogged already?), so let's move on.

I finally made the official decision to stay in Alabama, in spite of being treated in Jackson, MS. I took care of business at Social Security and the DMV, and now have an AL driver's license. My photo upgraded from "looking stoned" to "looking like a complete psychopath", so that's unfortunate...albeit, funny. I'll spend this week getting my old car (whose name is Midori the Gypsymobile) transferred to AL, and following up with DHR concerning SNAP. I've tried to survive without food stamps, but it honestly hasn't been going well. I talk about food a lot but not the fact that I can't afford it and pretty much live on charity, so there it is. If you've been following long enough and know how much my SSI is, this isn't a surprise. My case worker was nice, and obtaining assistance shouldn't be a problem. On October 1, I'll apply for a handicap-accessible government subsidized apartment and get on the (mile-long) waiting list.

So that's what I'm up to lately. I hope everybody had a great summer. Hard to believe Autumn is right around the corner, but I couldn't be more ready for the 90-100 degree temps to vamoose.

Talk to you soon, friends. Thanks always for being here.