Friday, April 5, 2013

Current Projects, Operation 2013 Update, and General Rantness

I've been wanting to blog, but I'm not sure what to say. My brain is all over the place, so I guess I'm just going to spill whatever comes out.

Today is Dad's birthday. He would have finally been retirement age. I hate that he's not here to see the kids (my much younger siblings) grown up, graduating from school, having babies, etc. My youngest sister just graduated with her Bachelor's in History and is moving this very day to Michigan. My little bro and his wife just had their first baby (my darling Zoey), and my other sister graduates from college and gets a huge job promotion in May. My youngest bro is a high school graduate, now following in Dad's footsteps in the seafood and petroleum industries. This is all so surreal. I don't see them often, but I hope they know how much I love them and wish them the best that life can bring.

In other news...


I have been terribly snarky lately. Since beginning the new treatment, senses are heightened and everything bothers me. Lights, sounds, people...heh. Twitter is depressing and Facebook has become one big email chain letter hoax. I feel like I'm in 1999 again with all the garbage I'm seeing on the news feed. Then, of course, there are the people fighting about everything they can find to fight about. And if the extra special ones don't find something to fight about, they simply make it up. Drives me batty, y'all. I find myself running to funny profiles such as Grumpy Cat, Alton Brown, and Drunk Hulk (<-did I just admit to that one?) to keep my sanity. Ha! I suck at life right now.

In my defense, I am my calm, quiet, boring self again after hours of real sleep, but that is so hard to come by. I'm not sleeping at night at all, mostly just dozing off and on during the day. I'll be the first to admit that I am a mess when I'm sleep deprived. I'm in a great deal of pain all the time, and I can't get in any position and be comfortable. When I do fall asleep, I have disturbing dreams. No rest in sight. My head also never stops hurting thanks to acetazolamide, which I've confirmed I cannot ditch without falling back into frequent daily episodes of paralysis. What I would give for a solution to the chaos.

Speaking of med regimen, I am thankful that Medicaid is finally paying for some of the meds. Unfortunately they aren't paying for all of them, stating that I don't need them, as if they would have any freaking clue. Potassium is everything where HKPP is concerned, yet they say I don't belong on that much of it. Hate to say it, but this is a pretty solid example of state government failing where medical care is concerned. However, it is no different with insurance companies, so there's simply no winning this particular debate. At least Medicaid doesn't reject me altogether, like BCBS has (emphasis on BS, if you get my drift) for the last 18 years. So, I'm out of luck on the kidney, heart, and muscle meds that Medicaid is refusing to cover. This treatment is vital, but tough luck, eh? I am forever slipping through the cracks. Our medical care system is sad.

I did not intend for this entry to become a rant fest. As I said, that's pretty much what life has been lately. I'm just too tired and need some relief. I know, get over it Kelli. Moving on.

Current projects:

I have a small editing gig. It's a children's coloring book. Hopefully it will lead to more small gigs, and perhaps I can eventually, actually work a little bit again. I'm dreaming, but I can't help it. I'll never stop trying to better myself, even from my sickbed.

I'm slowly increasing my online presence after all these years. My most recent place to connect is LinkedIn. My entire resume is there, and a few other tidbits about me. I will eventually add links to my sidebar of most of the places I can be found online. I already have a few links there, and I'm rebuilding my main page at ugottafriend.com. Not that it matters a whole heck of a lot. I'm really not that interesting.

My latest tangle-in-progress:




My eBook for charity is coming along, but I have no idea when it will be finished. There is a lot that I want to do with it...lots of info to share...and I am not willing to do this half way. It is completely not-for-profit and will be free to download, but I want it to be worth reading at any rate. It is important to me that I release this eBook before I try to publish anything else. I'll keep everyone posted.


Operation 2013 Progress:

Operation Organization - One step forward, two steps back. I'll get there.
Operation Pound - Only three pounds lost, but at least I'm losing. I'll get there too.
Operation Grub - Learning how to cook, but my health has thrown a wrench in my progress. Trying to remember to tackle one meal at a time, as I am able. I'll get there!!!
Operation Orlando - I'm still in need of $400-500 before October. I hope to God I'll get there.

I feel so stupid mentioning this again, as I am NOT (!!!!!!) a solicitor. Feel free to disregard if you're not one of the friends who asked how to contribute towards this effort. The ChipIn account set up by friends went poof (the company out of biz), but I am still raising funds for my attendance at the Periodic Paralysis International Conference. This event includes genetic testing, research, and advocacy for care and quality of life. I have stuff for sale in my Etsy shop, with more coming soon. I can also accept donations via PayPal at ugottafriend4life@gmail.com. Thank you so much...

Last but not least, I'll bring back Friday Funnies soon. Yaaaay.

In the meantime, please pray for sleep so I don't punch anybody in the face. I would surely appreciate it!


P.S. - I've never punched anybody in the face in my life, and I never would.

I think. :)