I am aware that I am less than some people prefer me to be,
but most people are unaware that I am so much more than what they see.
— Douglas Pagels

Monday, February 18, 2013

Local Clinic Follow-Up

This is a medical post and may contain TMI. Fair warning.

I finally returned to the local clinic and saw Dr. B, who ordered the heart monitor for me last month. The results were exactly what I was expecting. Yes, I'm having some arrhythmia. No, there's nothing that can be done about it. So that's the end of that. Quick and painless, I suppose. I'm so glad to be off of the monitor because that thing was driving me absolutely batty.

We spent a good bit of time discussing other things. The aggressive treatment I'm on, the side effects, and the fact that I'm needing a local doc to take over my care...mainly script-writing. Now that relatives have stepped out of the picture where my medications are concerned, I'm up a creek unless Medicaid agrees to pay for everything. I literally don't have the funds to pay for any of it.

I have yet to successfully titrate the acetazolamide to the dose Dr. F wanted me on, but I'm still trying and I'm not going to give up. I am encouraged by the fact that I am no longer waking up in a state of paralysis. Yes, I still have paralytic attacks regularly...some of them serious...but I used to wake up paralyzed every single day. Since getting the acetazolamide in my system, that hasn't happened. That's a good thing, and in spite of the fact that it isn't improving my general weakness, and the side effects are very difficult if not unbearable at times, the conclusion is that I need to stay on this drug. I'm also still on everything else, and I'll write a separate post about meds and side effects later.

Dr. B is concerned about my kidneys, so he ordered a work-up and gave me a month of samples of Detrol to deal with some bladder issues I've been having. I've also been dragged against my will into an OBGYN appointment...boooooo! I don't want to go, and the nurse said they can't force me to, but they really want me to and gave me an appointment whether I liked it or not. Ha.

The great news is that he had no problem agreeing to rewrite all of my scripts. They've been turned in, and I will find out tomorrow whether or not Medicaid is going to cover them all. Pray hard, brothers and sisters.

I appreciate everyone's thoughts and well-wishes, always. You are all a tremendous blessing in my life.