Tuesday, September 11, 2012

A couple of stupid video blogs

I'm behind on posts here, but I'm trying to catch up. I took this vid a month ago. If you don't have Periodic Paralysis, this isn't going to interest you at all. I'm having an episode of weakness.

Edit Note: Sorry, I blocked all of my videos after receiving some messages on YouTube. I find it really sad that a person can't bring awareness about their condition without some twisted fool talking about sex. I hate creeps and I wish they would all fall off the face of the Earth. That is all.

 

Here I am today, with vocal cord paralysis. I transcribed below the video.

 

"Hey it's Kelli. Testing 123. I have no voice at all. I wanted to show everybody, anybody who's interested, in periodic paralysis what happens when the esophagus is affected. I've been having vocal cord paralysis off and on for a little over a year now since about May of 2011. It comes and goes, and this is frustrating. I can strain all I want but nothing comes out. And it gets exhausting to try. There are times when I can keep trying and I'll eventually squeeze something out, but it's very exhausting. Some days are a lot better than others. Sometimes I can carry on a conversation with someone and be fine, but other days are like this and I can't talk at all. I'm sure I'm going to transcribe this so people will actually know what I'm saying. Even in person right now, I can barely whisper. People can hardly tell what I'm saying, even in person. It gets pretty frustrating. Last year I lost my voice for six weeks. I had vocal cord paralysis for exactly six weeks. And that was quite an ordeal. I'm really really hoping that will not be the case this year...at least not this time. I hope not. I'm sorry to those that I have not been able to call. I know I owe several phone calls to some people and I have not been able to do that. But I wanted to let y'all see kinda what happens. You know, if you don't see me in person, then you don't really fully grasp what's going down with me. A lot of people lose their voices. And I was notorious for losing my voice, having laryngitis as a kid and a teenager growing up. And some people can still whisper and squeak out words, but with vocal cord paralysis it's very ify. There are times when I can and times when I absolutely cannot. Yesterday and today I have not been able to speak at all. There's a tiny whisper coming out but it's hard, it's very labored. I've been told this is very rare for Periodic Paralysis...absolutely possible, but doesn't happen terribly often to people so I guess...I'm special. I'm one of those people that has some of the rare side effects. The serious rare side effects with the esophagus. Breathing, swallowing, and speaking are an issue. So anyway, I'm just saying hi with no voice and just wanted I guess to let you see what happens. My esophagus feels like it's that big around, okay, and when this happens it feels like something's stabbing me in the throat and chest. Actually it's all right here. It feels like I'm being stabbed. Sorry. It's difficult. So anyway I'm going to stop trying to do this now because I think I'm making myself a little bit worse. So I'm gonna go. But anyway I wanted to kinda show y'all what's up with this and hopefully it will improve very soon. Talk to you later, bye."

(Cross posted to The Fight Against Hypokalemic Periodic Paralysis)