Thursday, January 19, 2012

I want every person on the planet to watch this.

Years ago I was caregiver for a child who acted exactly like her, also autistic, but I knew he was so much more intelligent than anyone around him realized and I pray for the same breakthrough for him that Carly has been given.

Sensory Overstimulation is so complex and horribly misunderstood. ADHD, OCD, and Tourette's are also in this category. I wish the world could grasp the fact that people with (undamaged brain) sensory disorders are not mentally ill. This is physical and physiological. The capacity to function is absolutely there, but the signals that control nerve stimulation are confused due to severe chemical imbalances. Literally a "system overload".

I got choked up when she said she wished everyone could be in her body for one day. God, yes. I say that all the time. I have Hypokalemic Sensory Overstimulation, a result of Neuromuscular disease. I can't describe how it feels to live in a body that feels like it's short circuiting 24/7/365. My symptoms don't present in the same fashion as hers, but it acts out of control in other ways. I admire this young woman so much for coming forward and sharing her story. She is a hero for the impact she is making in this ignorant world. We have barely touched the surface of Neurology...there is still so much to learn. I can't wait to read her book and her blog. I will be looking for it.