Wednesday, May 18, 2011

Home from University Hospital

My MDA appointment went about as well as it could have, I guess. The doctor is very knowledgeable and kind. He plans to treat my Hypokalemic Periodic Paralysis including genetic testing but is sending me to a Nephrologist first to try to bring me out of acidosis. He said as long as that trigger is out of control, I won't be able to manage the HKPP at all (which is what I've been telling local docs to begin with, and they didn't listen...IMAGINE THAT).

So I'm back home, playing the waiting game, trying to figure out what in the world I'm going to do until I am approved (financially) and given an appointment to go back to the hospital for further treatment. Finding transportation back and forth to this hospital (over 8 hour round trip) will be a task also.

I don't know...I'm just glad the MDA Clinic is on board to an extent. It's one step in the right direction and I'm thankful.