Saturday, May 7, 2011

HKPP Update: Pulse Ox & Thoughts

Feeling very badly this morning...labored breathing, painful tingling, and it seems like I'm declining again. Took a KCl 20 at 6:20am, and another at 9:30.

I put on the pulse ox and the first reading was heart rate of 125 and oxygen of 82. I knew that couldn't be right, and thankfully my heart rate fell to normal shortly after. However, my oxygen was 84 for several seconds, eventually rising to 89, where it stayed for a few minutes.



After a few minutes, it gradually rose into the 90's and ended up here...I suppose compensating for a little bit of lost time.



I also took a 2 minute video of the pulse ox so my friends at the Periodic Paralysis Network can tell me what they think about the bar that's raising up and down. Supposedly you can tell whether or not you're having arrhythmia from the fluctuation and speed of the bar, but I'm inexperienced and could use their input. I'm going to upload and send it to a friend shortly.

My heart rate was fluctuating a lot yesterday...69 to 110...and it was a terrible day. I felt awful and was almost on the walker again.

Basically, the pulse ox is doing what it was doing the night before I went to the ER. I was in nearly full paralysis, and I feel like I'm slipping towards that direction again. I have no idea why other than triggers (temperature, not sleeping, pain, muscle activity of any kind...this includes lifting anything, standing and sitting up unassisted) combined with not enough potassium. While I believe that I'm going to have to eventually increase the amount I'm taking (again), I am being careful to spread out the potassium to four to five doses a day in spite of the fact that my levels didn't raise one-tenth of a point after more than doubling my intake almost four weeks ago. I'm not sleeping at all, though. I'm horribly weak and exhausted, but the pain is keeping me from sleeping. If I had to guess what an electrical short circuit feels like, I'd say this.

I will also say that I'm a little surprised that the more potassium I take in, the more stable my heart rate is at times. There have been many moments when my HR was between 95 and 115, and my heart rate would fall back to the perfect 80's after taking potassium. I wasn't really expecting that.

I don't know what else to do. I'm trying my hardest to beat this.

Just keeping a record. I'll be printing it out for the MDA doc.