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Saturday, July 4, 2009

A friend's poem about Hypokalemic Periodic Paralysis has been published in the MDA magazine

As you can see, it is very frustrating living with a life-threatening illness that people don't understand. Thanks Victoria, well done.


A Day in the Life of a Periodic Paralysis Patient


The 911 call placed, you feel like you're dreaming,
You’re not, from afar you can hear sirens screaming;

The ambulance ride, your body’s not moving,
They wonder aloud, whoa, she's not improving;

Respiratory muscles won’t respond to a breath,
You know once again that you’re so close to death;

Whizzed in on a gurney, it’s all moving fast,
What? You’re parked in a hallway, suddenly bypassed;

How are you this evening? Then give you that look,
The oxygen, sensors and wires they unhook;

They make you feel guilty, as if you are faking,
You’re frightened, can’t breathe, and everything’s aching;

The ER visits, the doctors, the begging and pleading,
You would not desert me if I were here bleeding;

Weakness, paralysis and cognitive decline,
Inverted T-waves, arrhythmias are fine;

The patient is faking, playing possum I see,
With his hammer he can't get a jerk from my knee;

Agonizing pain, it strikes with a flash,
The doctor shrugs shoulders, departs in a dash;

Positive tests, plus symptoms and signs,
Potassium is low, but you will be fine.

~ Victoria Cecil-Shover
Solon, Iowa
hypokalemic periodic paralysis

http://www.mda.org/publications/Quest/q163infocuspoem.html